Before and After Zachariah by Fern Kupfer
My rating: 4 of 5 stars
When Fern and Joseph Kupfer decided to have a second child, they had no idea how that decision would affect their lives, as well as that of their daughter, Gaby. In Before And After Zachariah, Fern describes Zachariah's failure to accomplish even the simplest tasks: walking, sitting, crawling, even holding his head up.
As an infant, Zachariah was breath-takingly beautiful: long lashes, blond hair. The book's cover shows a sleeping baby (Zach) with his parents and older sister. However, it soon because obvious that he was severely developmentally delayed. At one point, Joe was visiting his mother, who was dying of cancer, when Fern called after a visit to a hospital with Zach; the doctors where baffled by what was causing Zach's problems. Fern was an emotional wreck over the lack of a diagnosis. Fern describes the phone call with Joe as the worse case scenario, likening it to an over-turned boat: who do you save, your mother or your wife?
The couple go from doctor to doctor, parent-meetings, groups meant to help developmentally delayed children, any place that offers a shred of hope, to no avail. In the end, they place Zach in an attempt to save their own lives as well as Gaby's.
I had originally read Before And After Zachariah years ago, then recently reread it. The newer copy of the book has two epilogues. The first was written several years after the book first came out, then a second one in 1998. The epilogues tie up the loose ends, telling what eventually happened to Zachariah, to her marriage to Joseph, to Gaby, and how Zachariah's live affected all off them, as well as their extended family and friends.
Before And After Zachariah is a good read, and a book that should be read. For the reader who has never had experience with a child or sibling with developmental delays, this will give insight to one family's struggles, while those readers with this experience will find themselves nodding, thinking yes, yes, that's it exactly! If you're wondering what non-fiction book to check out, this one gets my vote.
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